The Untold Stories of Myasthenia Gravis

the mission

Navigating a rare autoimmune disease like Myasthenia Gravis (MG) can feel overwhelming and isolating, especially in the absence of a cure. For those living with this condition, as well as their families, connecting with others who understand the journey is essential for emotional support and shared understanding.

There is a profound need to increase access to the real stories of Myasthenia Gravis that can help patients and caregivers alike gain access to resources that help them feel seen, heard, and less alone.

Rewriting Rare seeks to fill this gap by fostering a community where individuals can share their personal narratives. These stories will chronicle the challenges, triumphs, and insights experienced both before and after a Myasthenia Gravis diagnosis, creating a tapestry of lived experiences.

The mission goes beyond simply hosting these narratives online. By compiling these powerful stories, the goal is to change lives by curating a meaningful book, a resource that will serve to validate the diverse experiences of those affected by MG. The human experience in the face of a rare disease is unlike any other, and creating a collection of firsthand experiences will offer guidance, comfort, and hope to others walking similar paths.

Together, we can build a community rooted in connection, belonging, and resilience—illuminating the strength it takes to face a rewrite what it means to navigate a rare disease- one story at a time.

featured myasthenia gravis Stories- coming soon

Collective tales of resilience and hope from the myasthenia gravis community

Interested In Sharing Your myasthenia gravis Story?

We warmly welcome your stories, messages of support, and tips or resources you wish you had known when you were diagnosed. Whether it’s your personal journey, words of encouragement, or valuable insights, your contributions can inspire hope and provide guidance to others navigating life with MG.

Simply fill out the contact form, and we’ll send an email with detailed instructions. Please note that story submissions for the book will be considered over the next six months, so we encourage you to share your story or message soon. Story submissions to be featured on the website will be reviewed on an ongoing basis.

Together, we can build a community rooted in connection, belonging, and resilience. Your voice will help others find the strength to redefine what it means to navigate a rare disease, one story at a time.