Educational and Informational Resources

• Myasthenia Gravis Foundation of America (MGFA): Considered the primary source for information on Myasthenia Gravis, with a comprehensive website including patient education, support groups, and research updates.

• National Institute of Neurological Disorders and Stroke (NINDS): Provides detailed information about Myasthenia Gravis on their website, including symptoms, diagnosis, and treatment options.

• Genetic and Rare Diseases Information Center (GARD): GARD provides comprehensive, easy-to-understand information about rare diseases, including Myasthenia Gravis. It offers resources on symptoms, treatment options, current research, and support organizations, helping individuals and families better understand and navigate their condition.

• MedlinePlus: A reliable source for general health information, including details about Myasthenia Gravis, from the US National Library of Medicine.

• Muscular Dystrophy Association (MDA): While focused on muscular dystrophy, the MDA also offers information and support for individuals with Myasthenia Gravis.

Rare Disease Advocacy and Support

• National Organization for Rare Disorders (NORD): NORD advocates for individuals with rare diseases, including Myasthenia Gravis, by offering a wealth of resources such as patient assistance programs, research updates, and educational materials. It also fosters community connections and advocacy efforts to improve the lives of those with rare conditions.

Financial Assistance Programs

• The Assistance Fund (TAF): Provides financial support to individuals living with Myasthenia Gravis to help cover the high costs associated with managing the condition. TAF offers assistance with expenses such as prescription medications, insurance premiums, copays, and other out-of-pocket costs.

• Myasthenia Gravis Hope Foundation: Provides financial assistance and support to help patients manage the costs associated with Myasthenia Gravis care.

• Conquer Myasthenia Gravis: Offers financial assistance for patients residing in Illinois, Indiana, and Wisconsin. They also provide educational resources and support programs to improve the quality of life for those living with Myasthenia Gravis in these regions.

• PAN Foundation: Provides financial assistance to patients with Myasthenia Gravis to help cover treatment costs, including medications and other medical expenses.

• Medicine Assistance Tool (MAT): Connects individuals with resources to help reduce the cost of prescription medications. This tool can be invaluable for those managing Myasthenia Gravis, as treatments often involve specialized medications that can be expensive without financial assistance.

• NeedyMeds: Helps individuals find programs that assist with healthcare costs, including prescriptions, medical supplies, and transportation. It provides a searchable database of patient assistance programs and discount cards, making it a critical resource for managing the financial burden of Myasthenia Gravis care.

Healthcare Coverage

• Healthcare.gov: Serves as a central resource for finding affordable health insurance coverage in the United States. It provides tools to compare plans, understand benefits, and access critical healthcare services, which can be essential for those managing a chronic condition like Myasthenia Gravis.

Welcome to The MG Resource Hub

Navigating life with Myasthenia Gravis (MG) can be overwhelming, whether you’re newly diagnosed, have been managing the condition for years, or are supporting a loved one as a caregiver. To help you on this journey, we’ve created this comprehensive resource hub—a curated collection of trusted online tools, organizations, and programs designed to meet the unique needs of the MG community.

On this page, you’ll find links to:

• Educational Resources: Websites that explain MG symptoms, diagnosis, and treatment options to empower you with knowledge.

• Rare Disease Information: Platforms dedicated to raising awareness and providing guidance for living with rare conditions like MG.

• Financial Support: Assistance programs to help with medical expenses, prescription costs, and insurance premiums.

• Caregiver Support: Resources designed to provide advice, encouragement, and community for those caring for someone with MG.

• Medication Assistance: Tools and programs to help you access and afford the treatments you need.

This page is also community crowd-sourced, meaning it grows and evolves with input from people like you. If you come across a helpful website or resource that you believe could benefit others in the MG community, we encourage you to submit it using the form below. Your contributions will help ensure this resource hub remains a valuable and ever-expanding tool for everyone affected by MG.

Our goal is to connect you with reliable resources that offer the information, support, and financial aid you may need to navigate this challenging journey. These tools can be a lifeline for understanding your condition, easing financial burdens, and finding the support you deserve.

Explore the links below to discover how these resources can make a difference in your life.

Remember, you’re not alone in this journey...together, we are Rewriting Rare.

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