Privacy Policy

Rewriting Rare website is owned by Rewriting Rare, which is a data controller of your personal data.

This Privacy Policy applies to all information collected through your communications with Rewriting Rare, whether electronic, written, or oral; information collected through mobile applications (“Apps”) or Rewriting Rare websites (“Sites”); as well as any other information about you that we may collect offline or receive from third parties (collectively, social media tools, Apps, Sites, and offline or third-party information are referred to as the “Services”). By accessing our content and resources or providing your information to us, you accept and agree to the practices described in this Privacy Policy.

We are committed to safeguarding your personal data and ensuring its confidentiality and security.

Information Collected and Stored Automatically

If you do nothing during your visit but browse through the website or mobile app, do searches, read pages, or download information, we will automatically gather and store certain information about your visit. This information does not identify you personally. No information about users/visitors will be sold, shared, or utilized in any commercial way. We automatically collect and store only the following information about your visit:

• The Internet domain (for example, “company.com” if you use a private Internet access account, or “yourschool.edu” if you connect from a university’s domain) and IP address (an IP address is a number that is automatically assigned to your computer whenever you are surfing the Web) from which you access our website;

• The type of browser and operating system used to access our site;

• The date and time you access our site;

• The searches you make;

• The pages or screens you visit; and

• If you linked to this site from another website, the address of that website.

We use this information to help us make our site and mobile app more useful to visitors — to learn about the number of visitors to our site, what part of the site they are interested in, how long they use the site, and the types of technology our visitors use. If you engage in more meaningful or intensive activities on the website such as downloading information or actively responding to events or “calls to action,” then Rewriting Rare may collect information that identifies you as an individual or information which is linked or linkable to you as an individual or household. This information will be collectively referred to as “Personal Information.” Personal Information may include but is not limited to contact information, demographic information, health and other details shared through voluntary submission.

Sometimes we write a small file on the user’s computer called a “session cookie.” Session cookies automatically expire when users leave a website; session cookies retain information only during the session or for the purpose of completing a particular online transaction, without any capacity to track users over time and across different websites. Please note that cookies could potentially be replicated by sophisticated technology groups, but there is some risk in all online applications or websites. Other than a session cookie and the information described above, we do not obtain additional information from the user or the user’s computer.

We use Google Analytics, which uses cookies and similar technologies to collect and analyze information about the use of the Services and report on activities and trends. This service may also collect information regarding the use of other websites, apps, and online resources. You can learn about Google’s practices by going to www.google.com/policies/privacy/partners/ and opt-out of them by downloading the Google Analytics opt-out browser add-on, available at https://tools.google.com/dlpage/gaoptout.

Personal Information We Collect

In addition to the information collected automatically, we may also collect personal data you voluntarily provide to us (including but not limited to name, email address, city of residence, and any content submitted through forms on the website) to fulfill specific purposes such as story submissions, newsletter subscriptions, or direct contact.

Encouragement of Anonymity and Submission Guidelines

We encourage all users submitting stories or messages to use practices of anonymity. Please review our Terms and Conditions carefully to understand the guidelines for sharing content on this platform. Submissions should not include:

• Specific names of healthcare providers, medical professionals, or medical facilities names/locations.

• Any HIPAA-protected information or sensitive medical data without proper consent.

• The Rewriting Rare website is a platform for sharing personal experiences, insights, and messages of support. It is not intended to provide medical advice or replace consultations with a licensed physician or licensed medical healthcare professional.

Why Do We Process Your Data?

Our top priority is customer data security. We process only minimal user data, strictly as necessary to maintain the website and provide its features. Automatically collected information is used solely to identify potential cases of abuse and compile statistical information about website usage. This statistical data is not aggregated in a way that identifies individual users.

If you wish to use specific features of the website, such as submitting a story or subscribing to our newsletter, you may need to provide personal data. Choosing not to provide this information may limit your access to certain website features. Users with questions about required information are encouraged to contact us at contact@rewritingrare.com.

Our Commitment To Children’s Privacy

Protecting the privacy of the very young is especially important. For that reason, we adhere to the 1998 Children’s Online Privacy Protection Act (COPPA). (For more information, visit the Federal Trade Commission’s COPPA site at http://www.ftc.gov/privacy/coppafaqs.shtm.) The Rewriting Rare web pages are not directed at children but recognize that children may, at times, utilize the services of the web pages in sending personal information to Rewriting Rare. Whenever we receive such information or inquiries from those we actually know are under 13, we obtain parental consent before any personally identifiable information is collected, used, or disclosed. Rewriting Rare does not knowingly contact or solicit personal information from individuals under 18 years of age. However, this may occasionally occur if an outside source provided such information without our knowledge or consent.

Choice/Opt-Out

Rewriting Rare provides users the opportunity to opt-out of receiving communications at the point where we request information about the visitor. You can opt-out by:

1. Sending an email to contact@rewritingrare.com with your request to unsubscribe.

2. Following the “unsubscribe” link included in all our email communications.

Please note that it may take a reasonable period to process your opt-out requests. Opting out will not affect our ability to provide services related to previous communications unless you specifically request deletion of your data.

Your Rights

European Residents

If you are a European resident, you have the following rights regarding your personal data:

1. The right to be informed.

2. The right of access.

3. The right to rectification.

4. The right to erasure.

5. The right to restrict processing.

6. The right to data portability.

7. The right to object.

8. Rights related to automated decision-making and profiling.

9. To exercise these rights, please contact us using the details provided below.

Additionally, if you are a European resident, note that we process your information to fulfill contracts we may have with you or to pursue legitimate business interests. Your information may also be transferred outside Europe, including to Canada and the United States.

U.S. Residents

If you are a resident of the United States, you may have additional rights regarding your personal data under state-specific privacy laws. For example, under the California Consumer Privacy Act (CCPA), California residents have the right to:

1. Know what personal data we collect, how we use it, and with whom we share it.

2. Request Access to specific personal data we have collected about you.

3. Request Deletion of your personal data, subject to certain exceptions.

4. Opt-out of the sale or sharing of your personal data (note: we do not sell personal data).

5. Non-discrimination for exercising your privacy rights.

If you are a U.S. resident and wish to exercise these rights, please contact us at contact@rewritingrare.com. For verification purposes, you may be required to provide specific information about yourself.

Links to Other Websites

Our website may contain links to other websites not owned or controlled by us. Please be aware that we are not responsible for the privacy practices of these other websites or third parties. We encourage you to read the privacy statements of any external websites you visit.

Information Security

We store the information you provide on secure servers in a controlled environment, protected from unauthorized access, use, or disclosure. We maintain reasonable administrative, technical, and physical safeguards to protect against unauthorized access, use, modification, or disclosure of personal data within our control. However, no data transmission over the Internet or wireless network can be guaranteed to be 100% secure.

Legal Disclosure

We will disclose any information we collect, use, or receive if required or permitted by law, such as to comply with a subpoena or similar legal process, or when we believe in good faith that disclosure is necessary to:

• Protect our rights.

• Ensure your safety or the safety of others.

• Investigate fraud.

• Respond to a government request.

Contact Information

If you have any questions about this Privacy Policy or wish to contact us concerning your personal data, please email us at contact@rewritingrare.com.

Right to Change Privacy Policy. 

Rewriting rare reserves the right at any time to modify, alter, or update this privacy policy. your use of the website following any changes means that you agree to follow and be bound by the privacy policy as changed, subject to limitations under applicable law. any change to this privacy policy shall be effective as to any user who has visited the site before the change was made. please review the policy periodically, and especially before you provide any personal information to us.

The privacy policy was last updated on 01/12/2025.